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Anyone interested in the world of CCSVI from Surgeons, Doctors, Consultants to patients with MS, ME Chronic Fatigue etc; are all welcome.
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Forum
Where have you been for treatment? Where would you recommend? 268 Replies
With all the talk of different places around the world offering CCSVI scanning and intervention, where would you recommend?Continue
Started by The Webmaster. Last reply by Pria on Tuesday.
Exercise for People with MS
Check out our new blog on exercise tips for people with multiple sclerosis http://www.patient-experience.com/index.php/multiple-sclerosis-and-exercise-what-is-the-best-way-to-exercise-if-you-have-ms/Continue
Started by Belinda Shale Apr 30.
MS and Benign Paroxysmal Positional Vertigo 4 Replies
Hi all 1st post. Got told had MS about 3 years ago go through the usual symptoms of problems with Heat and Blurry Eyes and Depression, Fatigue, Myoclonus or twitch or jerk plus pain behind eyes. I don't get these all at once just every other day or week. The other day while sleeping on the settee i woke to find i had a real bad headache and my left ear was suddenly blocked and i went dizzy so i just put it down to having a relapse, I went to my doctors and she could not find a blockage in my…Continue
Started by James Reid. Last reply by James Reid Apr 10.
Is CCSVI any help for Primary Progressive MS ? 23 Replies
I believe , from my symptoms, although I have never had this confirmed by my consultant, that I have PPMS.Symptoms started late 30s and I was diagnosed in my early 40s. That was 10 years ago.I have NEVER had a relapse, things have slowly got worse.I have no pain (thankfully) but walking and co-ordination are bad (difficulty holding a pen or knife).The latest newsletter (today) from EHC by Dr Gilhooly suggests the CCSVI treatment is not effective for PPMS.I wondered if anyone with PPMS has…Continue
Started by Patricia Collick. Last reply by Robert Roach Apr 6.
NHS GUIDANCE ON CCSVI NOW RELEASED
NHS guidance regulator says more research is needed on CCSVI operation to improve blood flow from the brain in people with multiple sclerosisBy Tim LockeWebMD Health NewsReviewed by Dr Sheena Meredith28th March 2012 - A procedure to treat a condition called CCSVI in people with multiple…Continue
Started by The Webmaster Mar 29.
Was told my jugular veins were fine. 5 Replies
OK so my jugular veins were fine, therefore no treatment.What's causing the MS then? Have had MS for 30 years, not too bad yet, but now at 64 things are beginning to get worse.Have heard that the asygos vein is sometimes at fault - emailed Dr Tom Gilhooly at Glasgow but have not heard back yet........where do we go from here?Carolyn CoulsonContinue
Started by Carolyn Coulson. Last reply by Shez J Jan 28.
when you are part of the 10% with no jugular problems? 53 Replies
Hello, I went to Glasgow in November. I was told I had no blockages in my jugulars which I am very happy about. However there was reflux in my jugulars. In Glasgow, they do not provide complete tests, they only do a Doppler. Also, there was nobody competent to discuss the results of my Doppler. I feel disappointed that this was a half test.Has anybody experience of a similar diagnosis?Best wishes,Fabienne Continue
Started by Fabienne Brilland. Last reply by Tony Miles Jan 5.
Dr Wahls Overcoming ms through diet (healthy veins)
This is a must see,a Dr Wahls overcame secondary progressive ms changing her diet, she tells her story here she has gathered so much information.http://www.youtube.com/watch?v=KLjgBLwH3Wc&feature=shareContinue
Started by Carol Adams Dec 2, 2011.
CCSVI and Secondary Progressive Multiple Sclerosis (SPMS)
CCSVI and Secondary Progressive Multiple Sclerosis (SPMS) – Michelle’s CCSVI treatment journey as a treatment for MSPlease drop down to our latest video blog on the treatment of MS using CCSVI. It would be really great to have your thoughts and questions about MS or CCSVI…Continue
Started by Belinda Shale Nov 30, 2011.
A success story with CCSVI!
A success story with CCSVI! – Lori Batchelor tells her CCSVI and multiple sclerosis storyCheck out Lori's blog about her success with CCSVI on The Patient ExperienceFeel free to make comments or ask questions!…Continue
Started by Belinda Shale Nov 29, 2011.
CCSVI World News
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Blog Posts
Check out the latest MS research
Posted by Belinda Shale on April 18, 2012 at 17:06
NICE: More research needed on CCSVI for MS
Posted by The Webmaster on March 29, 2012 at 7:40
New CCSVI video blog
Posted by Belinda Shale on March 19, 2012 at 10:25
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CCSVI-Tracking
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I have been liberated!
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CCSVI with MS
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